Eric Dane is angry. Angry that he’s been hit by ALS, also known as Lou Gehrig’s disease.
“I’m angry because my father was taken from me when I was young, and now there’s a very good chance I’m going to be taken from my girls while they’re very young,” says the actor, 52, whose father fatally shot himself when Dane was just 7.
The “Euphoria” and “Grey’s Anatomy” star, who revealed his diagnosis last Tuesday, sat down with “Good Morning America” to talk about his amyotrophic lateral sclerosis, an incurable degenerative neurological condition. In ALS, the muscle neurons linking the brain and spine to the muscles deteriorate, leaving the muscle with nothing able to tell them what to do or when to do it. No messages means no movement, no functioning, in systems including eating and breathing.
The actor said in an interview broadcast on Monday that it’s been about 18 months since he started experiencing symptoms. It took a series of doctors and tests before he found out he was one of the 5,000 people a year diagnosed with ALS in the United States.
“I started experiencing some weakness in my right hand and I didn’t really think anything of it at that time,” Dane told Diane Sawyer, his voice perhaps sounding a bit slower and thicker than usual. “I thought maybe I’d been texting too much or my hand was fatigued.
“But a few weeks later, I noticed that it had gotten a little worse, so I went to a hand specialist, who sent me to another hand specialist. Then I went to a neurologist, who sent me to another neurologist, who said, ‘This is way above my pay grade.’”
Nine months after consulting with the first physician, Dane had his diagnosis.
Now “those three letters” — ALS — hit him every morning when he wakes up, he said.
“I have one functioning arm … my left side is functioning,” Dane said. “My right side has completely stopped working.”
Adding to the horror, his left arm is “going,” he said. “I feel like maybe a couple, few more months and I won’t have my left hand either. It’s sobering.”
The former competitive swimmer and water polo player recalled the moment he realized he no longer felt safe in water. He dove off a boat to snorkel with his daughter in the ocean, then couldn’t “swim and generate enough power to get myself back to the boat.” The younger of his two daughters with actor wife Rebecca Gayheart, 13-year-old Georgia, had to come to his aid.
After she dragged him back to the boat, Dane said, he sent her back out with her friend and the snorkeling guide. Meanwhile, he broke down crying.
“I was heartbroken.”
Life expectancy for people with ALS varies by age of symptom onset, type of ALS and whether a person is male or female. The overall median life expectancy from symptom onset is 30 months, according to ALS United of Greater Chicago. Some people die within a year, while others have lived 20 more years, the group said. Earlier onset seems linked to a better survival rate.
The famous theoretical physicist Stephen Hawking, who died in 2016 at age 76, is an example of someone who survived for 55 years with the disease after being diagnosed at age 21. The minds of people with ALS stay sharp even as their bodies fail.
“Killing Me Softly” singer Roberta Flack died a little more than two years after revealing her ALS diagnosis at age 85.
Dane said Gayheart has become his “biggest champion” and “most stalwart supporter” as he continues to work when he can, including on a new series, “Countdown.”
“I don’t think this is the end of my story,” he told Sawyer. “I just don’t feel like, in my heart, I don’t feel like this is the end of me. … I’m fighting as much as I can.”